Ryan William Foundation

Fin : 4 juillet 2021

Ryan William Demaiter was stillborn June 22 2018. Very early in pregnancy, it was discovered that Ryan had Acrania, a very rare neural tube defect that affects approximately 1 in 10,000 pregnancies. Acrania is the failure of the skull to form, which leaves the brain tissue exposed to amniotic fluid and subsequently leads to Anencephaly. Mortality rates for this heartbreaking condition are 100%. Ryan developed as any other baby would in utero, despite his neural tube defect. It wasn’t until the final stage of labour at 36 weeks that things became too much for his fragile little body and his heart stopped beating. In total, our foundation has raised over $17,500 for the 3 amazing charities we support.